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English to Spanish: Special Healthcare Needs General field: Other
Source text - English When a Parent Learns Their Child has Exceptional Challenges, Special Health Care Needs
or Disabling Conditions
Emotions have to be recognized and validated in order to best advocate for and support our children with exceptional challenges
Common Reactions:
Shock – It doesn’t make sense, it wasn’t supposed to happen to me. I took care of myself.
Fear – What will happen to my child? What about our dreams for our child and our dreams for ourselves? What about my job? Will I be able to work?
Denial – Acceptance of this situation and lifestyle come ever so gradually. Denial is a period of searching for answers, searching for treatments, searching for cures. Denial prevents the bad news from hitting all at once.
Anxiety – What do I do to reduce my feelings of powerlessness? What do I do to help my child? Anxiety mobilizes the energy required to face these new challenges.
Financial Impact:
• One parent often becomes unemployed or with limited employment
• Takes a huge toll over the years on the finances of a household
• Medical expenses require difficult decisions over what to pay for – clothes, groceries, medical bills. Forget vacations.
Stigma of disability – history
Medical model – a person with disability is sick or “disabled”… excused from typical obligations of society like going to school, getting a job, taking on family responsibilities, etc.
Rehabilitation model – having a disability is a deficiency that must be fixed by rehabilitation professionals or other helping professionals.
What is your frame of reference about disability?
Preconceived Notions – The messages we hear from the larger world:
• Focus on the glass half empty – the disability, the “can’t do”, the burden
• The words we hear: suffer, burden, courageous, victim, special, crippled, stricken
• Negative and false stereotypes: People with disabilities don’t work, criminalized, perverts, victimized, exploited, failures, can’t learn
• Disability is viewed with fear, discomfort and loss. It is stigmatized and the emphasis is on correcting and curing disability.
• Stereotypes about people with disabilities often come from the fact that American culture emphasizes what and how much a person can produce or how athletic or academically gifted people are.
• People with disabilities are laughed at and teased.
The challenge for families:
• We love our child, but because of perceptions and attitudinal barriers in everyday life, we feel isolated.
• We struggle with grasping that we are now part of the world of disability that has been perceived so negatively.
• We know our child can learn if given the right supports, but not everyone shares the same belief.
How does a family reconcile?
• Be honest with your feelings.
• Take one day at a time.
• Never underestimate your child’s potential.
• Encourage your child to develop to the best of their ability.
• Find positive mentors, other parents and professionals who recognize your child’s special gifts.
• Recognize your role as expert on your child and be involved with their educational program and medical care.
• Focus your attention on the positive contributions your child with special needs has made on the family.
• Believe your child will learn.
• Let a child be a child first. Therapies and interventions may be necessary but remember you have a child who wants to play.
With the assistance of families throughout NY, Parent to Parent has developed a network of parents (Support Parents) throughout the state who have made the offer to speak to another family who may be facing similar challenges. Would you like to speak with another parent? Would you like to join our network of parents helping parents and become a Support Parent?
Do you questions or need information about your child’s disability or health care needs? Contact Parent to Parent at 800-305-8817 or refer to our website for more information about our regional offices. www.parenttoparentnys.org
Translation - Spanish Cuando Un Padre Descubre Que Su Niño Tiene Retos Excepcionales, Necesidades Medicales Especiales o Condiciones de Discapacidad
Las emociones deben ser reconocidos y validados con el fin de abogar y apoyar por nuestros niños con los retos excepcionales de la mejor manera.
Reacciones comunes:
Un estado de shock – No tiene sentido, no debería haber ocurrido a mí, porque me cuidé muy bien.
Temor – ¿Qué va a pasar con mi niño? ¿Y qué va a pasar con nuestros sueños para nuestro niño y para nosotros? ¿Y mi trabajo, podría trabajar?
Negación – La aceptación de esta situación y el cambio en el estilo de vida viene muy poco a poco. La negación es un periodo para buscar respuestas, tratamientos y curas. La negación hace que las malas noticias que no llegan todos a la vez.
Ansiedad – ¿Qué puedo hacer para reducir mis sentimientos de impotencia? ¿Qué puedo hacer para ayudar a mi niño? La ansiedad inmoviliza la energía que se requiere para hacer frente a estos nuevos retos.
Impacto Financiero:
• Uno de los padres no pueden ser capaces de trabajar o tiene un empleo limitado
• Tiene un gran impacto en las finanzas del hogar durante muchos años
• Debido a los gastos médicos es difícil pagar la ropa y los alimentos. Es muy difícil o imposible tomar vacaciones.
El estigma de la discapacidad – la historia
Modelo médico - una persona con una discapacidad está enfermo o "discapacitado". Él o ella está exento de las obligaciones típicas de la sociedad, tales como ir a la escuela, conseguir un trabajo, asumir responsabilidades familiares, etc.
Modelo de Rehabilitación - una discapacidad es una deficiencia que debe ser corregido por profesionales de la rehabilitación y otros profesionales.
¿Cuál es su marco de referencia acerca de las discapacidades?
Nociones preconcebidas - Los mensajes que oímos de los demás:
• Centrarse en el vaso medio vacío - la discapacidad, el actitud de “no puede hacer”, la carga de la discapacidad
• Las palabras que oímos: sufrimiento, la carga, valiente, víctima, especial, lisiado, afectado
• Estereotipos negativos y falsos: Las personas con discapacidades no trabajan, son criminalizadas, son víctimas, son explotados, son fracasos, y no pueden aprender
• La discapacidad se ve con temor, incomodidad y pérdida. Una discapacidad es estigmatizada y el énfasis es como puede corregir y curar la discapacidad.
• Los estereotipos sobre las personas con discapacidades a menudo se debe al hecho de que la cultura americana da importancia a lo que una persona puede producir y la capacidad atlética o académica de una persona.
• Las personas con discapacidades son objetos de burlas por otras personas.
El desafío para las familias
• Los amamos a nuestros hijos, pero nos sentimos aislados debido a las percepciones y las barreras de actitud en la vida cotidiana.
• Luchamos con el hecho de que ahora somos parte del mundo de la discapacidad que tiene una percepción tan negativa.
• Sabemos que nuestros niños pueden aprender si tiene los apoyos necesarios, pero todos no comparten la misma creencia.
¿Cómo acepta la situación una familia?
• Sea honesto con sus sentimientos
• Vive un día a la vez
• Nunca hay que subestimar el potencial de su niño
• Anime a su niño a desarrollar al máximo de su capacidad
• Busque mentores positivos, otros padres y profesionales que reconocen las habilidades especiales de su niño
• Reconozca que usted es el experto para su niño y participar con su programa educativo y su atención médica
• Enfoque su atención en las contribuciones positivas que su niño con necesidades especiales ha hecho a la familia
• Crea que su niño puede aprender
• Deje que su hijo es un niño. La terapia y la intervención pueden ser necesarias, pero recuerde que usted tiene un niño que quiere jugar también.
PADRE A PADRE
DEL ESTADO DE NUEVA YORK
Con la ayuda de familias en todo el estado de Nueva York, Padre a Padre ha desarrollado una red de padres (Los Padres que Apoyan) que les hablará a otras familias que tienen problemas similares. ¿Quieres hablar con otros padres? ¿Quieres unirse a nuestra red de padres que ayudan a otros padres y convertirse en Un Padre que Apoya?
¿Tiene preguntas o necesita información acerca de la discapacidad de su niño o sus necesidades de atención médica? Por favor, póngase en contacto con Padre a Padre en 800-305-8817 o visite nuestro sitio web para obtener más información sobre nuestras oficinas regionales en www.parenttoparentnys.org
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Translation education
Master's degree - Niagara University
Experience
Years of experience: 31. Registered at ProZ.com: Jun 2011.
I have translation experience spanning over 30 years and a variety of areas including healthcare, automotive, pharmaceutical, health and beauty, environmental, engineering, food manufacturing and legal.
Following are some references from past work:
Jeannine Scibilia was contracted by Graham Corporation to translate drawings and documents from English into Spanish and vice-versa. The translations were very accurate and allowed Graham to finalize the project and ship it on time. Without Jeannine's hard work and commitment to our project, we would not have been able to close this job out on time and get paid. Jeannine was always available when we needed her, was able to meet all of our critical deadlines, and minimized the amount of back and forth by discussing the translations and technical words in lieu of just performing a straight word translation. She was able to understand the technical words used by Graham and provide the proper meaning and translation into Spanish. I would use her again for this type of work and will as the need arises.
Joe Aliasso
Business Unit Manager
Graham Corporation
20 Florence Avenue
Batavia, NY 14020 USA
585.343.2216 ext 228 (phone) | 585.343.1097 (fax) [email protected]
Jeannine’s translation work has been excellent. She has assisted Parent to Parent of NYS several times and her work is thorough, efficient, professional and always completed in a timely manner. A link to an example of her work is: http://www.parenttoparentnys.org/Family2Family/Fact%20Sheets/Spanish%20Section%20504.pdf
Janice Fitzgerald
Parent to Parent of NYS
P.O. Box 1296
Tupper Lake, NY 12986
www.parentoparentnys.org
518-359-3006
Fax: 518-359-2151
Mobile: 518-524-8258
"Jeannine Scibilia's translations are meticulous and accurate. They are
always completed on time, or ahead of time. She is well versed in the
translation of medical terminology. I whole-heartedly endorse her work:
excellent in every way!"
Nienke P. Dosa MD, MPH
Associate Professor of Pediatrics
Center for Development, Behavior, and Genetics
SUNY Upstate Medical University
750 East Adams Street
Syracuse, NY 13210
phone: 315-464-7603
fax: 315-464-7630
page: 315-441-2249
email: [email protected]
"Jeannine Scibilia from JS Translation Service has provided translation of training and safety manuals into Spanish on time and within budget. The accuracy of her translation of voluminous industrial materials and terms has been understood by the various native Spanish speaking employees without error.
Additionally, I have utilized Jeannine Scibilia for accident and injury investigation. Her translation services have aided in establishing root cause and preventative actions. I would unequivocally recommend Jeannine Scibilia from JS Translation Service."
Theresa D'Angelo
President
Complete Auto Network
716-897-9700
Please feel free to contact me with any questions:
Email 1: [email protected]
ProZ profile: http://www.proz.com/profile/1430839
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